Meet KASSY
Kassy Webb, diagnosed at 21
As a kid, my body was always in pain. At 16, I had a persistent butterfly rash on my face and was always tired. At the time, we talked with my doctor about lupus, but the testing that was conducted did not reveal a lupus diagnosis. It wasn’t until my dad was diagnosed with discoid lupus erythematosus (DLE) that I researched my symptoms more intensely. I demanded that my doctor refer me to a rheumatologist, where I received testing again with the same negative results. I fought long and hard to eventually get a diagnosis from a nurse practitioner and was put on a treatment regimen. I’ve had to deal with scalp lesions, mouth ulcers, and migraines. My diagnosis led me down a long path, but I don’t let that define me. Every day, I choose to advocate for my fellow lupus spoonies (lupus warriors), and I have dedicated my career to helping women thrive.
Does this sound familiar? Check out these resources to help you.
What Can Lupus Look Like?
Watch as some of our fierce lupus warriors talk about their journey with lupus and some symptoms they experienced